Other people’s words… What moves you? Die knowing something. Do things that matter to your heart.

What moves you most in a work of literature?

Advice from my 80 year-old self

“What moves me is, I think, the trifecta of memory, love, and the passage of time. The close observation of character, of the moment as it passes – suffused with love. The writer who says: Here I stood! I loved the world enough to write it all down.” Sarah Ruhl in a NYT interview - http://www.sarahruhlplaywright.com/

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“Stare. It is the way to educate your eye, and more. Stare; pry; listen; eavesdrop. Die knowing something. You are not here long.”

Walker Evans, who took archetypal photographs during the Great Depression (see one below)

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I came up from the underground MUNI and there was this poster (Do Things That Matter to Your Heart) from an art project by Susan O’Malley: Advice from My 80 Year-Old Self: An Artist’s Bittersweet Legacy of Real Wisdom from Strangers Ages 7 to 88.

And I thought, “How is it going (Am I doing things that matter to my heart)?” And I answered myself, “Pretty well. Yes.”

Walker Evans photo

In writing about this poster, I found the following on the Brain Pickings site: "Just as the answers (posters like these)— some profound, some playful, all disarmingly sincere — began appearing across the San Francisco Bay Area in O’Malley’s public art installations, an unforgiving testament to the very premise of the project struck: One winter Wednesday, 38-year-old O’Malley fell unconscious and died a week before she was due to deliver the twin girls with whom she was pregnant; despite the emergency C-section, the babies also perished.”

Susan O’Malley’s words: “I started this project because I needed to listen to my 80-year-old self. At the time, I spent sleepless nights wondering, Should I leave my grown-up job with a paycheck and benefits to pursue my artistic passions? This ongoing dream felt terribly irresponsible, scary, and uncharted. But with the rapid illness of my mom, who was only in her 60s at the time, life suddenly felt too short not to take a risk. How would I feel at 80 if I did, or did not, make this choice? Before I had the courage to truly take the leap though, I turned to the words of strangers to help me navigate the way.”

Point Reyes, March 2016

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“This ain’t no disco; this ain’t no fooling around.” Talking Heads

A beautiful person (looking into her mind), beautiful people

"We are to love in deed and truth, not just word and speech ... we ought to lay down our lives for one another." Dan Foster

(Some of the below names are changed for confidentiality.)

3/19/2007 - An email from Leslie to Diane & Marisa

Hi friends,

Maryam was discharged today about 1:00. I saw her yesterday and had a long visit + began trying to make arrangements to have A____ (brother) admitted at Green Oaks as his condition continues to deteriorate. Maryam and Nabilah both want him hospitalized and put back on his meds but he has continued to refuse to go into the Baylor ER altho staff have assured the family that he would be admitted. I did not go to the apt today as they were waiting for the Hospice Nurse so I don’t know if Nabilah and her husband who arrived yesterday were able to take him to Green Oaks after I left yesterday- that was their plan when I left about 4:30.

Leslie in her office, 1982

So see how this sounds for a plan:

Tomorrow while Nora and I finish with patients and close the clinic, maybe the 2 of you could visit her and see that everything is in place with Hospice (I have the # for Vitas but don’t know what Social Worker and Nurse are assigned). I will plan to go on Friday and over the weekend. We need to visit whenever we can- she has begun to have increasing symptoms as the cancer spreads throughout her body. Two days ago, she began having severe pain in her right leg, a result of it spreading to the bones in that leg, and yesterday she began to have difficulty swallowing. So Min predicts that she has only a short time (when pushed for an estimate, she told me 4-6 weeks and maybe less). As the cancer progresses, Min says that she will decline rapidly so we need to schedule ourselves to go by any day we can. If we share and you take Thursday/Friday beginning next week, I’ll take the rest. It is a great comfort to both Maryam and Nabilah to have us so I think we must do whatever we can.

I’ll bring the phone numbers and address tomorrow and we’ll work out the details. Diane, Maryam loved the flowers that you brought and tells me often how much she loves us.

If either of you are praying people, now would be the time. My heart breaks for this family, scattered all over the world, who in the end don’t even have their Muslim brothers and sisters to support them. To my knowledge (and Min’s) there has only been one visitor from the mosque in Richardson and that was at least 2 weeks ago. Of course, we haven’t discussed the irony that this beautiful Muslim girl would die surrounded by a Jewish Dr., his Hindu Nurse, a fellow wounded soul from Burma and her Christian friends from Agape.

I’ll see you tomorrow. Thanks for your help.  

Leslie

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We ought to lay down our lives for one another
Lay down our lives for one another
Lay down our lives
For one another

One year

On our front porch

It’s been a year. Oh, Leslie. I miss you. I’ve loved you all my life – since we were 16 – for 55 years. I can’t believe how lucky I am. My heart is full – full of love, full of gratitude, full of grief. I adore you. You are the best thing that ever happened to me. Oh, what a life we had. It’s hard to believe how good it was – how full of love, how true – nothing was undone, nothing unsaid, nothing unfulfilled. 

Our happy little family. You, me, David. Talk about love! Through deeply magical times, through everyday times, through hard times, you loved him and are loved by him in full measure. With a year of your life left, he gave you (and me) a whole city – San Francisco, the best city in the world. And now, he’s taking good care of me. You taught me everything I know about being a parent – a good father, thanks to you. Sweet Leslie, we have a Son for the ages.

How we wish, how we wish you were here.

With David in Beautiful Hue - our favorite place

I was thinking a few weeks ago that you probably thought adoration was your due. When the roses were in bloom, I would scatter rose petals where I knew you would walk when you got home, on the sidewalk, up the steps, across the porch and to the front door, and I think you were like, that’s about right – and so it was. 

I can’t say who – the announcement isn’t mine to make – but someone you loved is pregnant. It’s a girl(!) and her name will be Leslie. Someone you helped in elementary school is graduating from Jesuit and has scholarship offers (>$40,000/year) from St. Edwards and Baylor. I’m in touch with your friends and they are all doing well. Your Son and his husband are well. Your husband is doing better – after all these years I love you as much as I ever did. 

January 2015

It’s probably against the rules, so I’m not actually saying that we’re scattering your ashes in the beautiful National AIDS Memorial Grove, and on Haight Street where so many people were so kind to you, and at the magical 37 bus stop, and in the Castro – places that you loved and where you were welcomed. And of course among the roses and perennials at our home. 

About 10 hours before you passed away.
Edematous, but look at you - Hi Leslie!

We had a beautiful life together. And then, in the past few years, it got even better. There were times in those last few months when it got hard between us (I didn’t understand what was happening). Then, somehow, we both surrendered and love came down like a shimmering fall of beauty and truth. Real. And then, as our time ran out, we were pure – ahhh, Leslie, how we loved.

You died as you lived, loving and loved.

A new Leslie!

The pain is unbearable. Stabbed to death every day – and still grateful, still loving, still adoring. 

National AIDS Memorial Grove - in the meadow, on the hillside, among the redwoods. Leslie!

.

Keo

January - ceremony in Keo and Chouen's bedroom

(Notes from my blog and what was written for the funeral.) Keo was born in Cambodia in the Khmer Rouge years. As a baby, she didn't have enough to eat, no medicine, no home, so she was often sick. Her father was taken away by the Khmer Rouge not long after she was born. Through the miracle of her mother's love, she lived through the terrible Khmer Rouge regime. Her mother, Roeuth and her grandmother, Lon carried her from Cambodia to Thailand. From there, they were sent to Utah, and from there to Dallas. 

Keo and Chouen were married in 1994. At first, she and Chouen lived with her mother and grandmother. Later, she and Chouen lived separately from her mother and grandmother, but still very close. Keo worked in several different jobs and everywhere she went, she made good friends, some of whom are here today. Keo and Chouen traveled to their homeland, Cambodia in 2005. Although there have been hard times in her life, she has lived a good life. She has loved and been loved.

Many people have helped and the family extends their deep gratitude. I want to also say the names of three other people who were long-time friends and with Keo until the end: Suasaday and her husband, Jimmie, and Suasaday's Mom, Keo Thorn.

I made some notes over the past 6 weeks when Keo was so sick from the cancer. I hope these will speak to the question of who she was and what kind of person she was.

December 2015. Keo began talking... sometimes whispering, sometimes a little stronger. She talked a long time about her life as a poor refugee child – what it was like for her learning a new language and customs, going to school, helping her grandmother take care of neighbor children, struggles in school, and her hopes and dreams. 

Altar set up immediately after she passed away

She graduated from high school and passed the TASS. She went to work in a factory, where, being so young, she was given a hard time by older workers and had to fend off unwanted advances by other workers and supervisors. There were gangs in some of the places she worked and there were many problems.

These were gripping stories. She would start a new one and I would be kind of holding my breath, hoping that she wouldn’t be hurt and every time, she made the right decision. 

She also talked about visions she had – being baptized in the clear water by Jesus; being protected; making the decision to leave the gold behind. She said, “I was born this way.”

January 2016. Three weeks into seeing Keo as life slowly slips away from her body. Three weeks since she first said, “I’m ready to go.” 

I thought about Jesus’ agony in the garden of Gethsemane right before he was crucified. “Remain here… watch with me,” he said to his disciples. They didn’t do it. 

February 2016. Keo continues to waste away. A couple of days ago, I said to her husband, When I first started coming here, I think I was very helpful. Now… I’m seeing something beautiful (and so sad).

• Something beautiful like with only a couple of exceptions, every time I come in, her husband is sitting or lying on the bed with her, massaging her legs, cradling her, wiping her lips, loving her. Her mother is there, too.
• Something beautiful like seeing Chouen sitting against some pillows and Keo (she couldn’t weigh more than about 65 pounds now) propped up and leaning into his embrace.
• Something beautiful like it’s all so clean, no smells, no tv, the altar moved from place to place depending on which way she’s lying (oh, so small now) on the bed… this is sacred space.
• Something beautiful like love and faithfulness as real and palpable as the walls of this room we're in right now.
• Something beautiful like her husband and her mother touching her in ways I know are to memorize the feel of her.

March 2016 - ceremony in living room

She was born in hell – and her mother kept her alive through the Khmer Rouge years and across the border and across America and 39 years later here they both are on this bed in a room overlooking a playground.

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Keo passed from this life in March 2015. And in the end, the sum of her life is integrity. A lovely, sweet person, who loved and was loved.

Her husband and her mother were with her, holding her in her last moments - just as they did throughout her illness. 

Matthew 25:23 (the parable of the talents) speaks directly to what Chouen and Roeuth did: "His master said, 'Well done, good and faithful servants!'" Chouen and Roeuth, In the most difficult times, you never gave up, you never quit, you never faltered. You were the embodiment of love and faithfulness.

Things I love, at the corner, dreaming, something beautiful, the Old Golden Land, I’m on the way, Beanie!

At the corner of Market and Church

Once again, some of the photos will have nothing to do with the text. I was thinking, what photos would I like to look at in a year or five years?

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I love (or like a lot)… babies, puppies, flowers (especially fragrant ones), parents being sweet to their child, pretty women, baking bread, San Francisco… At first I thought I would make an inclusive list, but stopped at what is here. Of course there are people, but I already write about them a lot (Leslie, David, John, Jeff, others). I love each one of you, named here or not.

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There was a woman on the cold January downtown corner near First Presbyterian. She had that skinny, jittery look of methamphetamine, complete with gurning around an unlit cigarette hanging out of her mouth. A man walked to the corner. He had tardive dyskinesia with tongue thrusting and grimacing (surely from too much Prolixin or Stelazine or whatever drug). I saw him give the woman a light with all the smoothness of a man in a tuxedo in some kind of old-time upscale night club.

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Sourdough with currants, pecans, cinnamon

Yesterday I was listening to Neil Young singing about a dream his wife had - "It’s a dream, only a dream, and it's fading now..." and I felt my own meaning to the words and was so so sad to think that maybe all this with Leslie was a dream. Now I think, if it was all a dream, what a dream! 

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My friend continues to waste away. A couple of days ago, I said to her husband, When I first started coming here, I think I was very helpful. Now… I’m seeing something beautiful (and so sad).

Something beautiful like with only a couple of exceptions, every time I come in, her husband is lying on the bed with her, massaging her legs, cradling her, wiping her lips, loving her.

Something beautiful like seeing him sitting against some pillows and her (she couldn’t weigh more than about 60 pounds now) propped up and leaning into his embrace.

Something beautiful like it’s all so clean, no smells, no tv, the altar moved from place to place depending on which way she’s lying (oh, so small now) on the bed… this is sacred space.

Something beautiful like love and faithfulness as real and palpable as the walls of this room I’m writing in right now.

Something beautiful like her husband and her mother touching her in ways I know are to memorize the feel of her.

She was born in hell (Cambodia 1975) – and her mother kept her alive through the Khmer Rouge years and across the border and across America and 39 years later here they both are on this bed in a room overlooking a playground.

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Speaking of vision quests, I recited/sang this to her yesterday:

Keep on walking where the angel showed

(All will be One, all will be One)

Traveling where the angels trod

Over in the old golden land

In the golden book of the golden game

The golden angel wrote my name

When the deal goes down I’ll put on my crown

Over in the old golden land

I won’t need to kiss you when we’re there

(All will be One, all will be One)

I won’t need to miss you when we’re there

Over in the old golden land

We’ll understand it better in the sweet bye and bye

(All will be One, all will be One)

You won’t need to worry and you won’t have to cry

Over in the old golden land.

(Robin Williamson)

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Sourdough with currants, pecans, cinnamon

After I left their apartment yesterday afternoon, I went on to Baylor emergency for the abdominal pain that’s bothered me for about a week. Trying for a couple of days to decide if I should go. Then I asked myself, what would I say to someone in my situation? It’s a no-brainer: Go. I went. I have acute pancreatitis. Haha, I’m glad I went! Liquid diet for a few days, then small, low fat meals, no alcohol (no prob – I quit that 40+ years ago), those kinds of things. Way better than cancer of the pancreas!

Actually, I didn’t completely give alcohol up. A few years ago walking along a street in Saigon, Leslie saw a sign saying, Beer – 10,000 dong (about $.50). Let’s go in, she said. From then on, that became an evening ritual for us… in Saigon, Hanoi, Hue, Bangkok, Chiang Mai, Hong Kong, San Francisco, Dallas. Good times. 

Lying in the room, waiting for sonogram results, thinking, it was just a day ago that I was thinking about pancreatic cancer. And that now there is some chance I may have it (and relief that I didn't). Sometimes Leslie and I would call one another Beanie or Cecil. Lying in the ED room, looking into the distance, looking toward the Old Golden Land, and I’m smiling and thinking, “I’m on the way, Beanie!”

In the garden

I may be a one-woman man.

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“I’ll try to be around and about. But if I’m not, then you know that I’m behind your eyelids, and I’ll meet you there.” 
(Terence McKenna)