Notes made before going to sleep, March-April 2015
|Leslie about age 45|
I’m finishing this entry at an ambient psytrance event in an old church in Oakland. Incredible.
All the photos are here
All the photos are here
I said to Jeff, “I don’t mean to put Leslie on a pedestal… who am I trying to kid; she’s been on a pedestal (where she belongs) for 50 years.”
David: you have done/are doing exactly what you said you would do. Thank you.
I’m so sad, but somehow, at the moment, I’m not unhappy. Just think how many glory days we had.
Shortly after she died, several nurses and I were taking care of Leslie in her ICU bed and I said to them, “She had an insanely beautiful body.”
(SF, January) We had made love the night before and in the morning I said, “You know, that felt like the first time.” You said, “Yes, but better.” Oh, how I was looking forward to making love with you again.
|About age 20|
I felt good about my physical strength in helping Leslie in/out of the bathroom, up and down the steps, etc.
I took good care of my wife. Several times in her last weeks, I said, “Have you noticed that no matter how many hours I work, it’s always with a glad heart and face. Beautiful Leslie, it’s easy. I adore you.” We were irritated with one another about two times in the last month, but not about what I was doing/the caregiving. “It’s easy. I adore you.”
I realized that Leslie surrendered to my caregiving and taking care of everything. Jeff pointed out that I also surrendered – to this new and ever-changing reality.
Leslie escaped! She and I were both headed for a long, hard time. I worked in healthcare most of my life. I know what the score is. So did Leslie. She was on the bus to the penitentiary and she escaped!!!
She was never going to leave my care. She was never going to the rehab place where her mother went. I was working out the logistics and details of caregiving. I know what’s involved. Going in, eyes wide open, heart wide open.
She knew she was changing in a bad direction – physically and mentally. She’s never liked to talk about such things and I certainly didn’t push it.
I read what follows to Leslie (the first words in an entry I won’t be posting, titled “This much sadness is too much sorrow”):
One very serious thing. I am well aware that you’re in a struggle against supervision and similar issues. I can relate – as a big-time, long-time recipient of supervision myself ;-). But I want you to know with utmost clarity that if I ever need real supervision because I’m unable to take care of myself or whatever (like when I was in the hospital), that I trust you completely to do the right thing – to know what I want and need and act on it. And I vow to do the same for you.
|In Burma about 1980|
Dying is often not easy. These were hard times for her. She underwent profound changes starting at almost exactly 6pm that last (Thursday) night. She went to surgery about 1:30am Friday morning and she passed away back in her room surrounded by pure love about 4:30am. (I’m actually not clear on times, and maybe even days.) I was with her, embracing her, whispering words of love, of remembrance, people she loved, people who loved her, the Song of Ruth…
We had a sexual renaissance – kind of a global flowering in our interactions and attitudes. Part of it was being in SF, but the greater part was something else – we don’t know what. But we were thrilled. And all this in the context of back pain and disability. Awkward sex, great sex. The best we ever had. I was really looking forward to sex with Leslie again. Once, after surgery, when she was having a pretty good day, she brought up having sex. I’m like, “Oh, let’s just lie here together…”
I’m certain now that the greatest part of our bad times in November and December was related to the fact that she did have unfinished business with me and so she finished it. I had wounded her many years ago and she had some things to say and do in relation to that. It was very painful for both of us.
|Waiting for a bus outside Khao-I-Dang refugee camp 1982|
In recent years, we would always lie in bed talking before sleep – sometimes late. In her last months she talked far more than ever about her childhood and teen years. I loved hearing these things about her Mom and Dad and sisters and friends and so on. About her connections to them.
During the worst times, David said, “Dad, that isn’t Mom.” He said several times that I had to adapt. And I did. As I adapted, so did Leslie.
For better and worse. In sickness and in health.
Wherever you go, I will go.
David said that the situation wasn’t sustainable. I could see that, but maybe it would be sustainable if we didn’t worry too much about sustaining me. I was ready to sacrifice my life to her care. If you think about it, what else could I do? What else would I want to do? Wherever you go, I will go. I’ve had some tests and experiences in life and I felt ready for this one.
Leslie trusted me when the chips were down. She knew I would take good care of her.
In her last weeks Leslie had almost no appetite. I would fix tiny plates with 2-4 small bites.
In retrospect I realize the constipation secondary to opioids, hyponatremia, decreased activity, decreased fluid intake, etc. was basically untreatable. When she started taking opioids I asked her every day if she was constipated. She was irritated every time. As time passed I stopped asking…
Leslie had beautiful hands. I loved kissing and touching her hands. Of course later they weren’t so beautiful, but I never stopped stroking and kissing her hands. Her hands, her hair, her body, everything changed with the passage of time. I never stopped seeing how beautiful she is. I never stopped saying it and she knew it was true.
I think she just ignored stuff she didn’t like. “Forget, forget.”
In Leslie’s last month I would read to her when we were in bed – first from my blog (the traveling parts), and when that became too difficult for her to track, I would read from Little Golden Books and similar books I had stored in David’s closet. I just realized that everything I read was related to going home, finding a safe place, and the like. Little Golden Books I read to my sweet Leslie included:
Melanie Mouse’s Moving Day
The Fuzzy Duckling
The Shy Little Kitten
The Pokey Little Puppy
Home for a Bunny
Once when I was in his closet looking for another book to read to Leslie I saw a book titled, These Happy Golden Years. I burst into tears.
I say to myself, “I’m really alone.” Then David calls and I’m not alone. My beloved wife.
Of course things keep happening like Julio getting into Jesuit – a kind of wave goodbye from all the beautiful work Leslie did.
People have reached out to me every day this (first) week. Among them:
Lance and Chhorvy
Men in my Bible study group
Jun (and Jessica)
Here I am with David and the support is deeper and I hope there is some mutuality in supporting one another.
Anyway, except for David and Charles, I’ll be alone a lot. I have things listed out to help me stay focused, e.g., gym, registering for Kaiser in SF, the Apothecarium veterans group, and other things.
Maybe this trip to SF will be a time to mourn, a time for integration.
When I’m here alone I talk to your photos – I smile at your beauty – I cry for you and for me and for David. Yeah, how bittersweet this is. How sad.
|At Butt Fast Foods in the back of the Chung King Mansions, Hong Kong|
Wednesday – the day of the memorial service… It still seems unreal, but real. Sad, but with these strong feelings of gratitude and awe.
The gratitude is for your life, that I was part of it, that I knew who and what you are, that you love me, that I love you, that our love grew and grew. I never tired of you and being with you. That you gave so much of yourself to me, that you taught me how to be a good parent and a good man, that you saved my life (mentally and physically). You redeemed me.
The awe… you really did do everything I and others talk about you doing. You really did save all those lives, build all those families, bring hope to the hopeless, change the irreversible trajectory of so many people’s lives, teach me, teach David, Nora, others.
I adore you.
We had the memorial service for my beautiful Leslie. It went well. Part of what was on the program/the order of honoring is here. The music and slides were perfect. I chose three songs and David chose two. They were Ripple, Brokedown Palace, Attics of My Life (all by the Grateful Dead) and Downpour (Brandi Carlile) and A Love That Will Never Grow Old (Emmylou Harris). The setting (Wildwood Chapel) was perfect. Many people were there.
Integrity vs. despair: the final psychosocial/spiritual stage of life. LOL, Leslie came down firmly in integrity. Now it’s my turn.
She gave me Christmas! In my early years Christmas was a bad time – hopes smashed again and again in the shards of my father’s rage. Later, when it was just my Mom and brothers and Aunt Dinah it was better – good. But somehow those early years colored everything. Paint it black. Afraid to hope. Then Leslie. She gave me Christmas – magic, happiness – dreams come true. Once, early on she gave me the big box of crayons, the one I’d never had when I was a child.
I want to talk with you. I want you to know how I’m doing and what’s happening besides all the sorrow. I want you to know all the things I’m doing like you would like.
Alison at CM: “…how you looked at each other.”
From David, for memorial service program:
I cannot begin to describe the sadness and emptiness that your passing has left in my heart. Yet at the same time, I am overwhelmed with gratitude for every moment of every day that we had together.
Even before I took my first breath, you and Dad chose me. You chose me to be your son. And from the very beginning, we were a family.
|For David and Charles' wedding|
You have always believed in me, believed that I could be anything, do anything. And knowing you believed in me was all the strength I needed. You were my biggest fan, my most faithful ally, my best friend.
I promised you that I would always love you, that I would always take care of you. I hope you feel that I have lived up to that promise. And I promise to do the same for Dad. Our happy little family, forever. (And it's going to get a little bigger later this year).
Thank you. I love you.
From me, for memorial service program:
Goodbye beautiful Leslie. Now I know what people really mean when they say, “She will live in my heart forever.” It’s reality. Here you are. I’ve loved you all my life. You are the best thing that ever happened in my life.
When I had no wings to fly, you flew to me…
From my journal: I was lying beside Leslie one night, thinking that I know just a handful of people who have been as merciful with so many people for as long a time with as much competence and complete selflessness as Leslie. She gave it away like it was water. She was the embodiment of mercy and justice.
All that and our life together, making love with Leslie!!!
I’ve been with you in refugee camps, spending countless hours on some mean streets and alleys and in too many seriously run-down slum apartments; I’ve seen you comfort women who’ve been raped, people in pain, people who are dying, people past the edge of grief, pain, madness; I’ve watched you work miracles—going up against The Machine and winning, time and time again (Xena!); I’ve been with you on buses rattling all across Asia, on trains into the Vietnam mountains, on boats in the Gulf of Siam, in donkey carts in Burma, on Royal Nepal Airlines with the cockpit door swinging back and forth; we’ve slept together in a little grass shack on the Gulf of Siam, in Burmese guesthouse rooms with walls that went up ~6 feet and then chicken wire, in a tiny low-ceiling room in Nepal sleeping on a straw mattress with a giant wool blanket and a wooden latch on the door, in a room on the Thai-Cambodian border with artillery hitting a mile away – maybe closer, in rooms smaller than prison cells, in a brothel, in a little shack in Oklahoma with tornadoes roaring all around, in a really old hotel in a mostly deserted town in Nevada where we lived for a few months, in our happy home in Dallas… We’ve had some times!
|In a refugee apartment|
I love you sweet Leslie.
From San Francisco
Kay sent me this message on FB:
I woke up today thinking about Leslie's beautiful memorial service. It seems trite to say that she would have loved it, but it was a perfect remembrance of her life and work -- not one wasted moment or superfluous word. David's story about "Panama" was lovely. I hope you're in SF now, making the rounds of her favorite places, feeling her spirit with you. My memories of Leslie: her smile (see David's version of it), her shock of white hair, her (entirely appropriate) sense of righteous indignation, and the phone. She used the telephone as her cudgel, hammering away at institutional resistance and never, never hanging up until she had reasonable assurance that a patient would be seen. Your teenage heart chose the right woman and the rest of us are fortunate to have known her. What a great gal! Be kind to yourself in the coming months as you work through this difficult time. Consider every hug a little gift from her --- or, at least, a little package of her good karma coming back to you.
Thank you Kay. Now I know why I clicked FB today. I'll copy this and send to David. Coincidentally, I transcribed this from yesterday's NYT in an article about a woman who helps other women escape bad arranged marriages (quote from a woman who was helped to escape and more): “I cannot even describe what it’s like to have an angel sweep down and kiss you on the forehead and then hold your hand and tell you, ‘I’m not letting go until you’re okay.’” That was Leslie, a bright, sparkling star in so so many nights
Email to David: What I was saying re Dr. Lichliter saving Mom from a code sends a chill through me and makes my heart speed up every time I think of it. That was as close a call as it gets. Like living through an ambush.
She not only escaped, she dodged a close-range bullet (of a hell of a lot of trauma and suffering).
I didn't really cry all day yesterday and again today until I wrote the above. Then I cried hard and for what seems a long time.
I took some photos of Leslie about 8 hours before she passed from this earth… her state of mind is shown as good. It gives me joy to see all these pictures.
Of all the people in the whole wide world to walk down the hall, nobody could have been better than Warren Lichliter.
I’m glad I told you 1000s of times how much fun you are. In my life, the thrill is gone, that’s for sure.
I’m a lot less now than when I was with you.
A year and a half ago we were walking along a street in Saigon late one afternoon and Leslie said something like, “Look, a beer only costs 10,000 dong here. Let’s go in.” We did and from that day onward, we had “happy hour” together every evening.
My beautiful Leslie died about 4am last Friday, March, 6, 2015. I am filled with sorrow and with gratitude for her life, our life, our little family’s life together for so many happy golden years.
We fell in love when we were 16 literally at first sight outside the cafeteria at Thomas Jefferson High School. My home life was not good and Leslie’s parents, especially her mother, were always kind to me. I would come over to her house late at night and toss coins at her window to wake her and she would slip out of her room and let me in. We would cuddle up in the den (the farthest room from her parent’s room) and talk and make out for endless hours. Nights of innocence.
Leslie went to college and I went to the Marine Corps (one of many clues about who’s the smart one). When I came home from Vietnam in the fall of 1967, a little worse for wear, she was in a relationship with someone else, but that soon came to an end and we’ve been together ever since. We were married October 18, 1969.
Our son, David, was born and adopted June 16, 1985. What joy he brought and still brings to us. Leslie adores him.
When Leslie died there was no unfinished business between us, nothing unsaid, no apologies, no reconciliations. We were all complete and fulfilled. From an email to David:
|Around Christmas 2014, Leslie and David. Love.|
I was looking at photos of you this morning (3 weeks in) and crying quietly. My beloved wife.
Easter marked one month since Leslie passed away. David and Charles and a friend of theirs and I went to church at Grace Cathedral. It was a good place to mark the passing of time. On Good Friday I went to the AIDS Memorial Grove (sacred space) to reflect. It’s past a month now. I think it’s been a week since I’ve cried hard – since the deep sobbing that leaves me empty and exhausted and better off. I cry every day of course, but quietly, and usually only about twice. I’m no longer thinking of Leslie every moment of every day.
|In our San Francisco apartment|